Jayden

We all see the brightness of the sun,
see the rain, and the storms that come.
The ocean so blue and the sky so clear
we can see when were standing here.
We forget what it would be like in the dark
to never see where the x is marked
We watch TV and the senseless dribble
when little Jayden cannot see his scribble
So stand up and help Dear Little Jayden
Let him see what we all have made him
A world so bright and full of colour
and the picture of a mother’s face like no other
To see himself in his father’s eyes
To embrace the things that we most disguise

Let Jayden See

Jayden is like most 3 year old boys: he is cheeky, energetic and hates putting on his shoes and socks. He loves noise: singing, music, crowded places and the hum of a spinning washing machine.

What makes Jayden different and special from his peers is his sight impairment. Otherwise a healthy little boy, he is totally blind, unable to see light, shape or movement.

Jayden was born with a condition called Optic Nerve Hypoplasia (ONH) “Optic Nerve Hypoplasia refers to the underdevelopment of the optic nerve during pregnancy. The dying back of optic nerve fibress as the child develops in utero is a natural process, and ONH may be an exaggeration of that process. ONH may occur infrequently in one eye but more commonly in both eyes.”
(http://blindbabies.org/factsheet_onh.htm; http://padenlane.com/; http://www.tsbvi.edu/Outreach/seehear/spring99/opticnerve.htm)

Until recently, Jayden’s family had accepted as he grew from a little boy into a young man, they would have to teach and guide their special little boy through a world designed for the sighted.

Then they heard about the success of other ONH children who received regenerative treatment offered at Beike Biotech China, founded by the University of Beijing, China. (www.beikebiotech.com). The course of treatment utilises umbilical cord stem cells to encourage the growth of a patient’s own regenerative cells.

The family’s goal is for Jayden to see the faces of his family, and to be able to learn to read by seeing large written letters: “.....even if Jayden can see light and shade, it will all be worth it” said his mum.

The family require a minimum of AUD $45,000 to enable them to travel to the clinic in China and pay for the basic course of 6 stem cell treatments. The cost for the basic procedure is US$26,300 (approximately AUD $33,300), which includes accommodation at the facility. Every AUD $3,500 raised above minimum target will enable Jayden to receive more stem cell treatments, and therefore give him a greater chance of success.

Jayden’s family are unable to meet the costs of the procedure and airfares, and will be working hard with the help of the community’s generosity to raise the funds. The family's aim is to travel to Beike Biotech China later in the year for Jayden to receive as many treatments as can be afforded.

Jayden’s Update - 2010

Well the fundraising went really good we ended up raising $53000. Which got us to China on 22 Feb we stayed for 8 stem cell treatment which ended on the 29 March. Jayden received 7 of the stem cells via IV and 1 via spinal tap we also received therapy 5 days a week which consisted of ... read more.

Jaydens Progress

As to date we have noticed Jayden has more control over his eyes. We think he may be able to see bright light. Jayden seems to be communicating more since we have returned back from China. We will hopefully be getting some tests done over the next couple of months to find out what ... read more.

DONATIONS:

Donations for Jayden’s Quest for Sight can be made, click here to contact us.

www.JaydensQuestForSight.com

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Soon you will be able to follow the latest news about the appeal,
read about Jayden's progress while receiving treatment
and post messages.

Jayden's family would like to say a big "Thank You" for every donation made. Every Dollar goes towards helping Jayden in his Quest to See.

Jayden's family would also like to thank all those people who have generously contributed their time and effort for the Jayden’s Quest For Sight Appeal.

For information about Jayden’s Quest for Sight contact:
Debbie: 0435945629 or email debbiejsd@hotmail.com

News Article

Certificate of Sanction: Jayden's Quest for Sight has been issued a Certificate of Sanction under the Collections Act 1966 from the Department of Justice & Attorney General, Queensland Government on 17 June 2009, valid for the purpose of collecting funds between 1/7/2009 to 31/1/2010. The certificate number is CP5279. It is a requirement of the certificate that the Jayden's Quest For Sight submit an audited statement of receipts and payments to the aforementioned office within 4 weeks of the closing date.

* JAYDEN’S QUEST FOR SIGHT IS CURRENTLY FOR QUEENSLAND RESIDENTS ONLY.

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